8 posts tagged “autism”
I had an idea tonight for another course that might be fun to prep for, if not teach someday. It would be a course on “Prodigy Literature.” It seems like the genre of child prodigy stories is growing much faster, as measured by numbers of titles on the shelves, than books about average children or less than average. My own son loves to read Orson Scott Card and the Ender series, Eoin Colfer’s Artimis Fowl series, Harry Potter, and a number of other books and series about young boys with unique gifts. Tonight, I finished one suggested to me by my son that I somewhat enjoyed Ookay. IT has its drawbacks and I cannot say that I recommend it).
He and I may argue about this tomorrow but I can’t find it in my heart to put it in the category of great literature but I did learn some things about him and about myself in reading it.
An Abundance of Katherines is about a young high school graduate with an IQ up around 200. Assume that is a good deal higher than my own. Grin. What I like about the book is that it traces the difficulty that intelligence creates in the social lives of young people afflicted with it. Colin, the main character in the book has just been dumped by his 19th girlfriend, each of whom, we learn in the course of the story, was named “Katherine.” Like any 18 year old who has just been dumped, he is in pain. But I suspect that the pain is worse because a person like this cannot stop thinking about the sources of it. When your brain just naturally connects anything to a subject you are interested in, it becomes impossible to think about anything without quickly coming to think about the most important things.
We are introduced to Colin reading his yearbook.
“For the next 14 hours without pausing to eat or drink or throw up again, Colin read and reread his yearbook, which he had received just four days before. Aside from the usual yearbook nonsense, it contained 72 signatures. 12 were just signatures, 56 cited his intelligence, 25 said they wished they had known him better, 11 said it was fun to have him in English class, seven included the words “pupillary sphincter,” and a stunning 17 ended, “Stay Cool!” Colin Singleton could no more stay cool than a blue whale could stay skinny or Bangledesh -- could stay rich. Presumably, those 17 people were kidding. He mulled this over -- and considered how 25 of his classmates, some of whom he'd been attending school with for 12 years, could possibly have wanted to “know him better.” As if they hadn't had a chance.”
These are just signatures in a yearbook. But notice how they can be analyzed and broken down into statistical conclusions. Everything has meaning in this sort of a mind. Everything can be connected to other things. Or as Colin says in his Eureka! Moment, “Love is graphable.” Here is Colin’s best friend, Hassan describing it.
“’How does he do it? Does he just memorize everything?’ Lindsey was saying.
“No. Its not like that. It's like, if you or me sat down and read a book about, say, the president, and we read that William Howard Taft was the fattest President and that one time he got stuck in a bathtub, that might click in our brains as interesting, and we would remember it, right?” Lindsey laughed. “You and I will read a book and find like three interesting things that we remember. But Colin finds everything intriguing. He reads a book about presidents and he remembers most of it because everything he reads clicks in his head as interesting. Honestly, I've seen them do it with the phone book. “He'll be like, oh there are 24 listings for Tischler. How fascinating.”
Colin, who is standing outside the door has to agree. But he tells us why he found the number of Tischlers in the phone book fascinating and … when he explains it, it makes sense. He also understands why it is that this ability to find anything interesting simply by associating that thing with other sets of interesting datasets is what makes it difficult for him to tell a story. “Authors never included the whole story;” he says, “they just got to the point. Colin thought the truth should matter as much as the point, and he figured that was why he couldn't tell good stories.”
When trying to explain why one of his former Katherines had dumped him, he explains,
“I was both too smart and too dumb for her.”
I suspect this is so because a smart person can connect many many things in their minds but they often cannot seem to connect the ones that are crucial to their social functioning. Perhaps they see so much, they miss too much? And when people who love them for connecting so many things, dump them for not connecting the right many things, the feeling of being dumped takes even longer to heal because everything they come across brings them back to it.
“You can love someone so much, he thought. But you can never love people as much as you can miss them.”
Smart kids are no different than normal kids. They feel the need to be with someone that they can think out loud with. “That's who you really like.” Colin observes, “The people you can think out loud in front of.” But who wants to spend time with someone who can think out loud about the number of Tischlers in the phone book? Precious few. And this is why Colin notes that books make better dates than people.
“Books are the ultimate Dumpees: put them down and they wait for you forever; pay attention to them and they always love you back.”
I will close with Colin’s explanation of the difference between prodigies and geniuses.
“Prodigies can very quickly learn what other people have already figured out; geniuses discover that which no one has ever previously discovered. Prodigies learn; geniuses do. The vast majority of Child prodigies don't become adult geniuses. Colin was almost certain that he was among that unfortunate majority.”
Alas, if I were ever a prodigy, I could find myself easily in a sentence like this.
Question for comment: Do you think that intelligent people are likely to be more lonely in life than most?
"These children are born twice. Their second birth depends on you, on what you are able to give to them." Because they are born twice, their journey through life is a far more agonizing one than most. Yet ultimately, their rebirth will be yours too. This, at least, has been my experience. I have no more to tell you.”
Thirty years later, I want to thank you." From the novel, Born Twice, by Guiseppi Pontiggia
Early in the movie, the Keys to the House, the biological father of a disabled 15 year old boy meets his son for the first time. Born with significant birth defects (though lets assume for the sake of the conversation that the word ‘defect’ simply means, not along the pattern of ‘normal’), young Paolo absorbs the father that abandoned him so many years earlier almost without blinking. For what he lacks in mobility, he certainly makes up for in ability to forgive. By the end of the movie, Paolo is comforting Gianni (his father), helping him to cope with the feelings of loss that he knows his father will experience when they must again be separated. In a sense, this is a story of a prodigal father. A father who ran away but who finds, upon his return, a boy running (albeit with a cane) to meet him, embrace him, and slay a fatted calf for him. Clearly, Paolo is not disabled. We are. And this may be the point.
Somewhere around the halfway point in the movie, Gianni is introduced to the book, Born Twice by Guiseppi Pontiggia. The novel, ironically, is largely the source upon which the movie is based so it is interesting to see it playing a starring role in the movie itself. The story line revolves around a father who simply records anecdotal experiences and reflections from 30 years of raising a “disabled” (or differently abled) child. Early on in the novel, a doctor tells the boys’ father, Frigerio, "These children are born twice. Their second birth depends on you, on what you are able to give to them" and it is precisely this mission that Frigerio sets out to accomplish, working for his son in every way possible. The book is dedicated to those with any number of attributes that place them off the bell curve.
"For the disabled who struggle not to be normal but to be themselves."
“Sometimes,” says the father in Born Twice, “he [Paolo] is almost fatherly with me. It is one of the things that touches me deeply.” I think this was probably the primary sentiment that the movie based on the novel is trying to highlight in the way that it portrays the relationship between Gianni and Paolo. Paolo’s handicaps make it essential that he be helped by a fatherly figure long after he should be. But Gianni’s handicaps as an adult necessitate that he also be cared for long after he should be as well. Sometimes people don’t understand things when it would be age appropriate to do so. Paolo is fifteen. His biological father is much older. Both were behind. The secret to their love is to not condemn each other for being behind in whatever way they find each other behind – to not be ashamed of each other’s “retardation” – but to simply offer to help in such a way as to say “Mostly, what I like is spending time with you.”
In the movie, The Keys to the House, a mother of one of the other disabled children in the hospital recommends the book to Gianni and insists that he should read it and that it is “about them”. The message implicit in the chapters of the book that I have had the opportunity to read I think is simply that people who work with or care for those outside the bell curve of normalcy must eventually come to own what they feel. As the children they work with are not exactly “normal” so also the emotions that a person who cares for them will not necessarily be “normal”. Many people will be able to define what a person in such relationships “should feel” based on their own experiences of “normal children” but one should get used to simply being honest – feeling authentically instead of predicatively. One has duties, and they probably should not be shirked. But one does not have a “duty” to feel a certain way about anything. “We can think of many lives” says the father in Born Twice, “but we can never disavow our own.”
The blessing of this movie is that Paolo
shows himself to similarly be a soul. His gift to his father is to feel towards
him as he does. Not as the adults in Paolo’s life assume that he will based on
what an abandoned boy should feel. He
has no reason to love his dad. But he does any way. In the final analysis, we
should all be so “disabled.”
Question for Comment: Have you ever learned something profoundly important from someone disabled?
"People with Asperger's want contact with other people very much; we're just pathetically clueless at it, that's all." Donald Morton
If you start out with the assumption that what you are going to watch in this movie is a caricature of a mental/emotional condition and not the condition itself, there can be much to be gained from it. There are aspects of the main characters' behaviors that are inappropriate (although I suppose that is often the point when trying to look at the difficulties that people with high functioning Aspergers or Autism face). For a variety of reasons, the movie is a paradox as it might be used to help children understand people with "outside-the-bell-curve" conditions but for a variety of other reasons, it is not really a kid's movie. It has entertainment value as a caricature but perhaps a well-done documentary will serve more effectively as an educational tool.
I suppose it should be said that the characters in this movie make all the same ethical, relational, moral, and life mistakes that all movies seem bound and determined to have their main characters make. Only in the case of people with certain disabilities (differing abilities) the mistakes are probably even dumber. It is not that people who are different cannot find people to love and be loved by. It is simply that the particular individuals in this movie do not know THEMSELVES well enough to be diving into intimacy as deeply and quickly as they do. They betray a greater lack of honest understanding about themselves than any functionaing relationship can handle.
"There is one difference between us," she says, "You want to be normal." And much depends on this difference. Which is why one asks, why have you moved in with someone who is so fundamentally different than you? I suppose the answer is that her particular form of the condition leaves her almost completely at the mercy of impulses.
The movie makes sure that everything comes out right in the end but after living with theese challenges for any length of time, you wonder if they really could in real time. That will be the strike against it. It attempts to show how lack of knowledge of oneself and of another person can lead to painful heartwrenching trainwrecks in relational/emotional life. But it somehow fixes these trainwrecks up in short time and lets the characters charge right into another round of tragedy without learning to really show down and learn.
But, that said, it does assemble an intriguing lot of characters and gives each of them a different assortment of the symptoms of their condition and if you could just watch the parts of the movie where syptoms are highlighted, it would be interesting fodder for discussion.
I just watched a documentary about the avant guarde stage director, Robert Wilson. Lets call a spade a spade. This guy is different. Maybe he is advanced guard. Or maybe his is too crazy to leave behind with any weapons. Its hard for me to tell. He obviously had and has all the marks of being on the autistic spectrum but his plan seems to have been to challenge the world to keep up with him, as though his goal were to make the world autistic, one paying theater goer at a time. I for one, probably am not going to be his biggest fan, but I admire his conviction that energy can eventually overcome oddity as I watched him throw himself into every nutso thing he seems to have wanted to produce. People pay to see his work. Maybe if for no other reason than his work is the result of a one man hurricane. Would you pay to see a real live tornado set down in the middle of a stage at such and such a time?
“He does not even conceive of not doing what he thinks should be done” said one commentator in the movie.
I tried to trace down some outside perspectives to get a glimmer inot the rational behind the absurdities I saw in the documentary and found this.
“Another technique Wilson uses is that of what words can mean to a particular character. His piece, I was sitting on my patio this guy appeared I thought I was hallucinating, features only two characters, both of whom deliver the same stream-of-consciousness monologue. In the play’s first production one character was “aloof, cold, [and] precise” while the other “brought screwball comedy… warmth and color… playful[ness]” (Holmberg 61). The different emphases and deliveries brought to the monologue two different meanings; “audiences found it hard to believe they heard the same monologue twice” (Holmberg 61). Rather than tell his audience what words are supposed to mean, he opens them up for interpretation, presenting the idea that “meanings are not tethered to words like horses to hitching posts” (Holmberg 61).
I think you can see why I might not like this stuff. I like to write. I like to communicate. I do believe that words are not “tethered to words like horses to hitching posts” but that’s why people who communicate well should WORK to make it happen more often. I don’t understand people who seem to WANT there to be incomprehensibility in language.
I found myself wondering as I watched if his work is all about normalizing autism.
“He is a perfectionist in many respects, never calling it quits until every single aspect of his vision is achieved. A fifteen minute monologue in Quartet took two days for him to light while a single hand gesture took close to three hours (Holmberg 126). This attention to detail certainly proves his devotion to the importance of lighting . . . Wilson is also very involved with the props in his productions. He not only designs the props himself but often takes part in their construction as well. Whether it is furniture, a light bulb, or a giant crocodile, Wilson treats each as though it were a work of art in its own right. He demands that a full-scale model of each prop be constructed before the final article is made, in order “to check proportion, balance, and visual relationships” (Holmberg 128) on stage. Once he has approved the model, the crew builds the prop, and Wilson is “renowned for sending them back again and again and again until they satisfy him” (Holmberg 128). . . . Such attention to detail and perfectionism usually ends up with a pricey collection of props. Although they are meant to be this way to enhance Wilson’s shows, “curators regard them as sculptures” (Holmberg 129), selling from “$4,500 to $80,000” (Gussow 113).”
http://en.wikipedia.org/wiki/Robert_Wilson_(director)
Question for Comment: Do the words “avant guarde” make you want to attend a performance or save your money for something else?
I sometimes wonder if we only find the blessings that have been buried in our day for us if we are living altruistically? Last night I picked up a hitch-hiker around ten at night and decided to take an extra fifteen mile expedition to get him to where he wanted to go. It actually feels good to do good deeds for strangers. Anyway, I felt a need for countering some sad things in my life today and wound up thereby, through a series of coincidences, reading a book about Daniel Tammet, entitled Born on a Blue Day. You can meet Daniel in a David Letterman interview HERE.
Having just finished the book a few minutes ago, I find myself pondering just why it is that some people are given these "thorn in the flesh" brains that can be so "Shazam Cool" but render whole periods of their lives a wasteland of lonliness. I wonder if there has ever been a savant in the world that would not have, at some point in time, traded their "gizmo head" in for a simple working relationship?
If I forge to mention it later, I love some of the things this guy has to say about the use of metaphors and the invention of words.
What strikes me about this video, after reading the book, is how well Daniel Tammet has learned to "cover" his autism spectrum/Aspergers tracks in a rather daunting social situation like this. This is a young man who can recite pi out to over 22,000 decimal places and can learn to speak fluent Icelandic in under a week. I love the story of the moment when his brother Lee discovered that Daniel could calculate huge mathematical equations in his head instantaniously (Daniel feels and sees his way to answers to math problems more artistically than by means of mathematical process.) His brother, sitting there with a calculator, asked him "What is 82X82X82X82?" to which Daniel almost immediately said "45,212,167." :His face looked different. He was smiling . It was the first time I had ever seen him smile at me."
If anyone reading this only gets a chance to read one chapter of this book, I would recommend chapter Five Odd Man Out. It is about the social difficulties of people with unusual wiring issues like Aspergers or high functioning autism. "I would spend hours awake at night imagingin what it would be like to be friends with somebody," he writes. On page 75, he talks about the problem that having uncesant cascading connectivity can have when trying to make conversation "in part because I remember so much of what I see and read and a chance word or name in the middle of a conversation can cause a flood of associations in my mind like a domino effect." He calls them "associative detours".
I also found it interesting how he tends to be able to think in short powerful bursts that are followed by periods when it seems he can't concentrate on anything. And I loved the part where he gave up on math because it seemed simply useless to learn a system of calculating that was infinitely less effective than the artistic method that he uses. What is fascinating to consider is how better art classes might lead to better math skills. The possibilities for what this one brain has to teach us are incalcuable, maybe to anyone but him.
What saddens me is that research indicates that something like 12% of the people diagnosed with high functioning autism have full time jobs in the UK. Why? The reasons are complicated I suppose but they boil down to societies which are unable to adapt their expectations to the place where they can stand to benefit from a different kind of servant savant. People on the autistic spectrum simply need help to BE OF HELP. As do we all.
Take a moment to watch Daniel Tammet learn Icelandic in one week. SEE HERE. Or watch the whole documentary HERE. In an interview on this documentary, he says something profoundly true. "The line between profound talent and profound disability seems really a surprisingly thin one."
Question for Comment: Do you think people with some sort of high functioning idiosyncrasy are better off partnering with someone else who shares their uniqueness, or with someone who doesn't? Why?
OK. I don't usually do this but ... tonight I am going to be a movie fascist and tell you one movie to not bother seeing and one that you must see. Let me explain. When I used to teach massively more college courses than any sane person would ever teach in one semester, I found that I often did a better job. To some extent, I think this is the result of the fact that when you cover material in different combinations, you get more insights out of each course you are covering. For example, by covering Ancient Egypt in World Civilizations I in the same week that I am covering the Fascist dictators in World Civilizations II and McCarthyism in Modern American Social History, I get more insights into each of them. In some ways, it can be interesting to watch seemingly unrelated documentaries and ask yourself to make connections. Tonight, I decided to watch two movies. One, entitled Heckler, is just about ... well ... hecklers. Its about how various performers, musicians, comedians, dancers, etc. deal with public humiliation. Making use of interviews with the performers, with hecklers, with film critics, even with the children of performers, it seeks to uncover the causes of heckling and more importantly, stretegies for dealing with them.
The other movie was entitled Autism: The Musical, a documentary that had me in tears for a third, in a state of amazement for a third, and a state of gratitude for a third. This is a MUST see movie. Seriously. Not only is it an excellent movie on autism and the autism spectrum and the ways in whiuch these affected children impact their families and schools, but it also sets the standard, for me, of how essential it is for any work of art to allow for that which one might like to edit OUT of a movie to remain. This is a movie that proclaims to me why so many churches are not places of healing. It reveals people as they are. It says in no uncertain terms that people who love others passionately MAKE MISTAKES. they screw up. They stumble. They mess up. This movie makes it clear that we are ALL dysfunctional and that just maybe we absolutely NEED people who are obviously so to make that clear to us.
We ALL need love. We all need affection. We all need understanding. We all need affirmation. We all need others to cut us a little slack. To let us make our mistakes. We all need to be allowed to mess up on the way to a good goal. The contrast between these people in Autism: The Musical, and their passion for affirmation on the one hand and these JERKS who think that it is their God-given place to tear other people's work down is unfathomable. This woman tries to pull off a musical with autistic spectrum kids. She tells the parents on the first night of the project that she has NO IDEA what is going to happen. Clearly, you have no idea what you can or cannot do with kids who do not themselves know what they can or cannot do.
But as one of the parents in the movie says, no individual can do much better of their tribe does not do better and for that reason, the public needs to be made aware of the potential of that tribe (in her case, kids who share a similar challenge in life). Another parent hits the nail on the head when she says "Its not up to us to judge the quality of [our children's] lives and I find that a challenge. What needs to happen with groups of kids like this is what needed to happen with African Americans, women, people with physical disabilities, and anyone else who the public has gotten used to devaluing. They need to be given a chance to step up to their own homeplates and hit their homeruns for this team we call humanity. Don't let yourself go through life with no accomplishment greater than a cultivated talent for telling other people what is wrong with them.
"Success and failure are milimeters apart" one of the comedians who has had to deal with hecklers and critics his whole professional life says. "You would have to be a moron to give your emotions to a professional critic." One film maker decided to get a little revenge and offered to pay money to some of his critics who would be willing to face him in a boxing ring. In the film, he takes on four or five of them and pummels them. I mean, he literally beats the tar out of them. I have no idea how much he paid these doofuses to stand in the ring with him and take their cumuppance but you could tell that it was one of the most satisfying uses of his money he ever got. Grin.
I often say that we wouldn't worry so much about what people thought of us if we knew how little they did and both these movies prove that. But don't bother with Hecklers. Seriously. It will just put you in a foul mood with respect to humanity. Autism the Musical though is a requirrement for anyone who reads this blog. Don;t make me hack into your netflicks queue.
Question for Comment: Do you have any idea how much work some people put into simply getting their performance up to sub-par? Who can you encourage? How? Why not now?
Look Me in the Eye: My Life With Aspergers, by John Elder Robison
John Elder Robison’s memories of growing up with Aspergers is the sort of book that is likely to make many people say “I knew a kid like that” or “Doesn’t that just remind me of ….” Or “That is Sooo …. Me”.
“Even at the age of five I was beginning to understand the world of things better than the world of people.” P. 18
I think in my case, I came to understand the world of ideas better than the world of people. At least I feel that way today. Robison suggests that it is important for an Aspergian kid’s peers to know that they WANT to learn how to relate. They don’t WANT to be humored and then ignored. “I never learned how to carry on a conversation from talking to grown-ups, because they just adapt to whatever I said. “ Robison writes,
“Kids, on the other hand, got mad or frustrated. How do normal kids figure this out? They learned from seeing how other kids react to their words, something my brain is not wired to do. I have since learned that kids with Aspergers don’t pick up on common social cues. They don’t recognize a lot of body language or facial expressions. I know I didn’t. I only recognize pretty extreme reactions, but by the time things were extreme, it was usually too late.” P. 21
What it eventually leads to is a sense of social failure and isolation that can be incredibly painful
“When I had a birthday my parents would make a cake and get me some presence and everyone ran around looking jolly. But every now and then I got invited to birthday parties for other kids, and at those parties there would be 10 or 20 kids all running around laughing. Those were the good parties, I thought. Mine were crummy. . . . I didn’t fully understand the reasons why, I knew their situation was better than mine, and it hurt to see what I was missing.” P. 27
“All of the child psychologists who said ‘John prefers to play by himself’ were dead wrong. I played by myself because I was a failure at playing with others. I was alone as a result of my own limitations, and being alone was one of the bitterest disappointments of my young life. The sting of those early failures followed me long into adulthood, even after I learned about Aspergers.” 211
Some of the traits that Robison highlights are the “flat affect”
“I have what you might call a logical empathy for people I don’t know. That is I can understand that it is a shame that those people died in a plane crash. And I understand they have families, and they are sad. But I don’t have any physical reaction to the news.” P. 32
The “miners helmet” (my analogy)
“No one knows why some people have a gift like this and another doesn’t, but I’ve met other Aspergians with savant like abilities like mine. In my opinion, part of this ability – which I seemed to have been born with – comes from my extraordinary powers of concentration. I have an extremely sharp focus.” P. 65
The inability to keep up with the pace of normal conversation because of the need to think (maybe even overthink)
“I’m a very logical guy. Psychologists say that it’s an Aspergian trait. This can lead to trouble in common social situations, because ordinary conversation doesn’t always proceed logically. . . . . it’s clear to me that regular people have conversational capabilities far beyond mine, and their responses often have nothing at all to do with logic. I suspect normal people are hardwired to develop the ability to read social cues in a way that I am not.”
Occasional Perseveration in speech patterns, almost as though the modem speed of the brain does not allow the play feature to keep up with the download function.
“It turns out the sentences are not formed in a single area of the brain. It is far more complex than that. We form the concept of a sentence in one spot. We choose the verbs in another area and nowns and yet a third spot. The sentence is built in pieces throughout the brain and then assembled into finished form. For some reason, Aspergians like me experience delays in the transmission of the sentence fragments within the brain. That gives a slightly ragged cadence to her speech that’s quite distinct from that of normal speech. Once you begin listening for it, it is quite recognizable.” P. 286
But the central contribution of this book involves a celebration of the strengths and weaknesses that a person with aspergers can learn to live with and even turn into happiness by means of the alchemy of self-knowledge. “My conversational difficulties highlight a problem Aspergians face every day” Robison writes:
“A person with an obvious disability – for example, someone in a wheelchair – he’s treated compassionately because his handicap is obvious. No one turns to a guy in a wheelchair and says, “Quick! Let’s run across the street!” And when he can’t run across the street, no one says, “What is his problem?” They offer to help them across the street. With me, though, there is no external sign that I am conversationally handicapped. So folks here some conversational misstep and say, what an arrogant jerk! I look forward to the day when my handicap will afford me the same respect accorded to a guy in a wheelchair. And if the respect comes with a preferred parking space, I won’t turn it down.” P. 194
He makes it clear that it is possible for any human brain to develop abilities once it sets such development as an intention.
“When we are young, our brains are constantly developing, making new connections and changing the way we think. As I recall my own development, I can see how I went through periods where my ability to focus inward and do complex calculations in my mind developed rapidly. When that happened, my ability to solve complex technical or mathematical problems increased, but I withdrew from other people. Later, there were periods where my ability to turn toward other people in the world increased by leaps and bounds. At those times, my intense powers of focused reasoning seemed to diminish.
I believe that some kids who are in the middle to more high functioning range of the autism continuum, like me, do not receive the proper stimulation and end up turning inward to such an extent that they can’t function in society, even though they may be incredibly brilliant in some narrowly defined fields, like abstract mathematics. . . . Papers I wrote back then are flat and devoid of inflection or emotion. I did not write about my feelings because I didn’t understand them. Today, my greater insight into my emotional life has allowed me to express it, both verbally and on paper. But there was a trade off for that increased emotional intelligence. I look at circuits I designed 20 years ago and it is as if someone else did them.” P. 209
“… it has been a good trade. Creative genius never helped me make friends, and it certainly didn’t make me happy. My life today is immeasurably happier, richer, and fuller as a result of my brains continuing development.” P. 210
“I trained myself to respond in a manner that is only slightly eccentric, rather than out and out weird.” P. 239
All in all a book of hope for those of us affected by the idiosyncrasies of being differently wired or by the idiosyncrasies of differently wired children.
Question for Comment: Is there anything that you feel more comfortable with than people? Has it been difficult for you to assemble enough friends for a “decent” birthday party?
It seems like everyone has a book for me to read these days. And the problem with that is that I have books everywhere right now. Every one of them is saying "read me". For example, I had a good conversation with my neighbor the other day about the effects of vaccines on children and learning disorders. She mentioned to me that the theory was that there were some bad batches of vaccine. Not that all vaccines were detrimental (But some people would say "Why take the risk?") She indicated that from the looks of educational testing that was done on my own kids that whatever "issues" they might have (And I would NEVER think of them as disabilities) are most likely genetic.
Anyway, she brought over a book yesterday entitled Head Cases: Stories of Brain Injury and It's Aftermath by Michael Mason. It is about stories of people with brain injuries and what they have to tell us about brains and about the human mind and maybe even about that aspect of us that may not be just brain tissue.
"Head Cases takes us into the dark side of the brain in an astonishing sequence of stories, at once true and strange, from the world of brain injury.
Michael Paul Mason is one of an elite group of experts who appear in the wake of tragic accidents and coordinate care that can last a lifetime. On the road with Mason, we encounter survivors of brain injuries as they struggle to map and make sense of the new worlds they inhabit. We meet a snowboarder whose life became permanently surreal after an errant jump; an "ultraviolent" child who has lost the brain's instinctive check on the impulse to strike out at others; a young man who cannot cry; and an Iraq war veteran whose odd maladies suggest that brain injury will be the war's most conspicuous legacy.
Underlying each of their stories is an exploration into the brain and its mysteries. When injured, the brain must figure out how to heal itself, reorganizing its physiology in order to do the job, and Mason gives us a series of vivid glimpses into brain science, the last frontier of medicine. We come away in awe of the miracles of the brain's workings and astonished at the fragility of the brain and the sense of self, life, and order that resides there. Head Cases echoes both Oliver Sacks and Raymond Carver, and is at once illuminating and deeply affecting."
I wish I had a big fat grant that I could draw from to pay my son, Skyler to read books for me as I am finding myself overwhelmed with curiosity about everything right now. And I have one book that I have set in the middle of the floor so that I can't forget it that I finished and have to write a report on. Grin.
They say that the human brain only functions at a fraction of its capacity. That has always mystified me. I have wondered how a human brain could evolve way more capacity than it used ... or conversely why a creator would give it way more capacity than He made available to us? And it makes me wonder if the human brain sustained some sort of ... I don't know ... brain injury at some point in time in our history? And what would it have been like to think with such a brain before the injury? What would it be like if I were to slowly "recover" from such a brain injury and begin to use more of my brain that I had ever used.? Would that be fun? would it be scary? Would it feel like craziness? Would it make me lonely?
I saw a preview for a movie last night. The movie was called Blindness. And I think the tagline goes something like this "The only thing scarier than going blind is finding out that you are the only one who can see." I wonder what it would be like to be seeing out of a healed brain ... or even a healing brain. Would a person feel incredibly lonely?
I mean one can imagine having a sibling ... someone you have grown up with and someone you love who just isn't seeing the world the way you can because your brain is healing but theirs for some reason isn't?
It all sounds like Science Fiction but it seems like it would make for a great story if someone had time to write it. Has anyone with a good background in brain science ever written a novel that played with what it would be like to think with a totally functioning brain?
For years, I have wondered just what it would be like to "see" out of a catamount's head. I mean, physiologically and neurologically, you KNOW that they are seeing things that you or I do not see. How would it change our perception of the world if just briefly, we could look out of a head like a catamount or a falcon? I am just speculating here but it seems like if I woke up with a catamount's brain and eyes and sense ... I would find myself overwhelmed with the additional data that my brain was being fed. Just overwhelmed. Like I would just be getting WAY more visual input than I was used to and it would exaust me just trying to manage it all.
How does a catamount prioritize its information I ask myself? How does it know what to screen out? (And this reminds me of a book my son keeps telling me I HAVE to read. It is called Feed.
"In this chilling novel, Anderson (Burger Wuss; Thirsty) imagines a society dominated by the feed a next-generation Internet/television hybrid that is directly hardwired into the brain. Teen narrator Titus never questions his world, in which parents select their babies' attributes in the conceptionarium, corporations dominate the information stream, and kids learn to employ the feed more efficiently in School." Review at Amazon.com
I wonder ... if we ever figure out what happened to our brains, if something did in fact happen to them ... what the process of healing it will be? And what schools would look like in a world where the healing of that brain and the use of that healed brain was the central mission?
My son Sim's book recommendation to me today was The Cat Who Brought Down the House
Question for Comment: What do you think? Have we humans come to think of life with a brain injury as normal? Would we regard people with "healed" fully functional brains as crazy? What would be going on in their heads that would not be going on in ours? All sorts of good questions today.